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Paolo Fusar‐Poli, Andrés Estradé, Giovanni Stanghellini, Jemma Venables, Juliana Onwumere, Guilherme Peres Messas, Lorenzo Gilardi, Barnaby Nelson, Vikram Patel, Ilaria Bonoldi and 18 more
Psychosis is the most ineffable experience of mental disorder. We provide here the first co-written bottom-up review of the lived experience of psychosis, whereby experts by experience primarily selected the subjective themes, that were subsequently enriched by phenomenologically-informed perspectives. First-person accounts within and outside the medical field were screened and discussed in collaborative workshops involving numerous individuals with lived experience of psychosis as well as family members and carers, representing a global network of organizations. The material was complemented by semantic analyses and shared across all collaborators in a cloud-based system. The early phases of psychosis (i.e., premorbid and prodromal stages) were found to be characterized by core existential themes including loss of common sense, perplexity and lack of immersion in the world with compromised vital contact with reality, heightened salience and a feeling that something important is about to happen, perturbation of the sense of self, and need to hide the tumultuous inner experiences. The first episode stage was found to be denoted by some transitory relief associated with the onset of delusions, intense self-referentiality and permeated self-world boundaries, tumultuous internal noise, and dissolution of the sense of self with social withdrawal. Core lived experiences of the later stages (i.e., relapsing and chronic) involved grieving personal losses, feeling split, and struggling to accept the constant inner chaos, the new self, the diagnosis and an uncertain future. The experience of receiving psychiatric treatments, such as inpatient and outpatient care, social interventions, psychological treatments and medications, included both positive and negative aspects, and was determined by the hope of achieving recovery, understood as an enduring journey of reconstructing the sense of personhood and re-establishing the lost bonds with others towards meaningful goals. These findings can inform clinical practice, research and education. Psychosis is one of the most painful and upsetting existential experiences, so dizzyingly alien to our usual patterns of life and so unspeakably enigmatic and human.
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Fusar‐Poli, P., Estradé, A., Stanghellini, G., Venables, J., Onwumere, J., Messas, G. P., Gilardi, L., Nelson, B., Patel, V., Bonoldi, I., Aragona, M., Cabrera, A., Rico, J., Hoque, A., Otaiku, J., Hunter, N., Tamelini, M. G., Maschião, L. F., Puchivailo, M. C., … Maj, M. (2022). The lived experience of psychosis: a bottom‐up review co‐written by experts by experience and academics. World Psychiatry, 21(2), 168–188. https://doi.org/10.1002/wps.20959
Fusar‐Poli, Paolo, et al. "The lived experience of psychosis: a bottom‐up review co‐written by experts by experience and academics." World Psychiatry, vol. 21, no. 2, 2022, pp. 168–188, https://doi.org/10.1002/wps.20959.
Fusar‐Poli, Paolo, Andrés Estradé, Giovanni Stanghellini, Jemma Venables, Juliana Onwumere, Guilherme Peres Messas, Lorenzo Gilardi, et al. "The lived experience of psychosis: a bottom‐up review co‐written by experts by experience and academics." World Psychiatry 21, no. 2 (2022): 168–188. https://doi.org/10.1002/wps.20959.
Fusar‐Poli P., Estradé A., Stanghellini G. [и др.] The lived experience of psychosis: a bottom‐up review co‐written by experts by experience and academics // World Psychiatry. — 2022. — Vol. 21, № 2. — P. 168–188. — URL: https://doi.org/10.1002/wps.20959
@article{fusarpoli2022lived,
title = {{The lived experience of psychosis: a bottom‐up review co‐written by experts by experience and academics}},
author = {Paolo Fusar‐Poli and Andrés Estradé and Giovanni Stanghellini and Jemma Venables and Juliana Onwumere and Guilherme Peres Messas and Lorenzo Gilardi and Barnaby Nelson and Vikram Patel and Ilaria Bonoldi and Massimiliano Aragona and Ana Cabrera and Joseba Rico and Arif Hoque and Jummy Otaiku and Nicholas Hunter and Melissa Garcia Tamelini and Luca Fasciolo Maschião and Mariana Cardoso Puchivailo and Valter L. Piedade and Péter Kéri and Lily Kpodo and Charlene Sunkel and Jianan Bao and David Shiers and Elizabeth Kuipers and Celso Arango and Mario Maj},
journal = {World Psychiatry},
year = {2022},
volume = {21},
number = {2},
pages = {168--188},
doi = {10.1002/wps.20959},
url = {https://doi.org/10.1002/wps.20959}
}TY - JOUR AU - Fusar‐Poli, Paolo AU - Estradé, Andrés AU - Stanghellini, Giovanni AU - Venables, Jemma AU - Onwumere, Juliana AU - Messas, Guilherme Peres AU - Gilardi, Lorenzo AU - Nelson, Barnaby AU - Patel, Vikram AU - Bonoldi, Ilaria AU - Aragona, Massimiliano AU - Cabrera, Ana AU - Rico, Joseba AU - Hoque, Arif AU - Otaiku, Jummy AU - Hunter, Nicholas AU - Tamelini, Melissa Garcia AU - Maschião, Luca Fasciolo AU - Puchivailo, Mariana Cardoso AU - Piedade, Valter L. AU - Kéri, Péter AU - Kpodo, Lily AU - Sunkel, Charlene AU - Bao, Jianan AU - Shiers, David AU - Kuipers, Elizabeth AU - Arango, Celso AU - Maj, Mario TI - The lived experience of psychosis: a bottom‐up review co‐written by experts by experience and academics JO - World Psychiatry VL - 21 IS - 2 SP - 168 EP - 188 PY - 2022 DA - 2022/05/07 DO - 10.1002/wps.20959 UR - https://doi.org/10.1002/wps.20959 ER -
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